Marc has been doing rather well the last few days, sometimes responding when we ask him to open his eyes and squeeze our hands, when he is not too tired. Yesterday the doctors tried to take the breathing tube out and he got very anxious and his heart rate and BP went way up so they stopped, but today they are going to try again. He is off sedation and is able to have some pain meds now, and he has been able to signal to the nurse when he is in pain which is a good sign.
On another side of things, today my son Eli was diagnosed with Autism. It is a diagnosis that we have been both dreading and anticipating, but having them tell us for certain was quite a blow. We now know the reasons he has been delayed in his speech and social skills so at least we can begin to figure out a structured treatment plan for him. It is frustrating that we suspected over a year ago that this might be the case, but his development and speech educators that work with him once a week dismissed us and said it was too soon to tell and they couldn't say anything more or provide help for him. Turns out they were wrong. I should have pushed it more at the time, but whats done is done and all we can do is work harder to help him communicate and learn. So this will mean 15-40 hours a week of therapy and one-on-one work with a developmental educator (NOT the one we have been seeing already) for the next year until his reevaluation.
What doesn't kill you makes you stronger, right? Then I have the strongest family around.
~Becky
Friday Farm Photos: Have a Long Eared Weekend.
9 years ago
3 comments:
Becky- PLEASE call me. I have some resources to help you through the getting to know about Autism maze and would be happy to help in any way I can. There is a lot to offer kids now that just didn't exist even 5 years ago, so don't lose hope! Let's talk once things calm down a bit for you all.
Love ya! Robin
Hi Becky! I work with several kids along the autism spectrum--and there is such a wide range of personalities and talents these kids have. And there are TONS of resources for you!!! A great book I recently read was The Curious Incident of the Dog in the Nighttime. --it is written from the perspective of a child with autism and it is AMAZING. It's definately worth the read to help understand the world through the eyes of someone with autism. You are an amazing mom and Eli could't be luckier to have your family!!!!
Becky,
My nephews's twin daughters have also been diagnosed on the autism spectrum (they are 4yo). There are so many variations and so much available now. With therapy/work his ability to be like any other kid will be very attainable. And you know, we are all
different...Years ago, we just attributed different behaviors and learning styles to just that... being a little different! With all your family's love and care, I bet he will do great!
Tina ( as in your next door neighbor!)
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