Friday, September 19, 2008

The incredible journey to home

Things are going really great here. Marc is doing better each day and looking better too. He is now on the Hi Level TBI program which means he is now able to keep track of his own scheduling, get himself to his therapy appointments (they don't come get him), he is in charge of his own morning care routine and making his bed, showering, he can now walk around the unit on his own and we can now take him anywhere on the campus with him walking (we had to use the wheelchair before). He is so much stronger, he can walk fast and jog for a bit but still has trouble with running (his left leg is still a little weak for that) but he is getting great at balancing and stretching and problem solving, math, etc, and he made and cooked a pizza today in OT and he got to eat it for lunch. He doesn't remember anything about Hitchcock which they said he wouldn't but his memory is getting better each day. He played chess, cribbage and scrabble the last 3 days. Its all good but while we see lots of changes and things for the good he still has things he needs to work on.

Marc is doing physically good but he still has to get better at coordination and gain better balance. He is disoriented and confused when he wakes up sometimes (especially during the night) he gets dreams confused with reality and this is part of the brain injury but once we tell him its a dream he understands. He still gets weak and wobbly when he is tired and walking, etc so while he is doing really well he has a long way to go to be back to the old Marc and probably not back to work for at least 6 months. He isn't sleeping well at night, even with sleep meds but the nurses/doctors keep experimenting with what and when he takes it so we are hoping that will all change soon. He did have a better night last night, slept 5 hours rather than 1 or 2 hrs. Each day he makes progress so only time will tell. He will also have out patient rehab at least 2 -3 times a week. We will definitely be busy.

Gotta go, thanks all for everything. love, Janice

2 comments:

Anonymous said...

Wow- he sure has accomplished a lot in a short time. We are really proud of him and how hard he's working. When will he be able to come home and do outpatient therapy instead? How are you and Frank holding up? What do you need? We're praying for your continued strength and Marc's too! xo The Ambers

Anonymous said...

What great news re Marc. It all sounds remarkable, but know he has a ways to go. We miss you all at church. A new couple was called yesterday to take over your class, Frank, but it's only temporary. We can't wait for you all to come back. You are all in our prayers each and every day. Marc's name is still on the prayer rolls in the Temple.
There's going to be a baptism on Oct. 11 -- husband and wife from Bethel. They're really "golden".
Stay well and give our love to Marc.
Ted and Pat O.